- Joined
- Apr 2, 2009
- Location
- San...
The following was in our local paper. I also have a jpeg file of the flyer that I can't get to upload (too big maybe, too much in my account???) Anyway, the info on the flyer is the same, but a bit prettier for those of you who like pretty things 
The Ruth Cooper Research Fund is holding a benefit on March 12, 2011 at 5:00 pm at the Forman Center.
Ruth Cooper was a lifelong resident of Manito. In 1990 Ruth was diagnosed with Vascular Ehlers-Danlos, a genetic connective tissue disorder that cannot be cured and alters life for those with the disease. The mutated gene that is carried by those with VEDS results in the body producing faulty collagen (a protein which is like a glue that gives connective tissue strength). Many VEDS patients suffer from aneurisms, and arterial and organ ruptures which cannot be repaired due to the thin, fragile state of the vascular system. In 1990 Ruth thought she was having a heart attack but instead her aorta had dissected. Luckily for Ruth and her family, after hearing how her father and oldest brother had died at an early age, a doctor treating her thought maybe he knew what was going on. This was the first time the words Ehlers-Danlos had ever been spoken to us. Ruth and her family went to Johns Hopkins where a definitive diagnosis was made. Ruth was 37 when she was given this diagnosis and was told she would not live to be 40. Ruth lost her life at age 56 to complications of VEDS on March 12, 2010. Three of Ruth’s 5 daughters have been diagnosed with VEDS.
Ruth’s Family is holding a benefit on March 12, 2011 at 5:00 pm at the Forman Center in Manito to raise funds for VEDS research. The benefit will include a roasted pork dinner and a hot dog meal for kids, adults $7.00, kids $5.00, from 5:00-7:00 (take out meals available). A live auction will begin at 7:00. There will also be a silent auction, a raffle, bag toss game and a cash bar. Party On Productions will be spinning music from 9:00 pm until 1 am, $5.00 at the door for the dance. Meal tickets will be sold at the door or in advance by contacting Chris James 309-360-1095, Karen James at 309-657-3508 or Brittany Dorf at 309-370-4529.
Ruth touched many lives during the battles she faced each day living with this disorder. It is the family’s hope that we can provide some financial support for a research project that is being done by Dr. Hal Dietz at Johns Hopkins University to medicinally help control and prevent aneurisms and ruptures in all VEDS patients. His work is very promising and he has hopes to have a medicine within 5 years.
[FONT="]Donations such as monetary gifts, volunteers or products for the auction are needed. Please contact Karen James at 309-657-3508 if you have something you would like to donate and we will gladly pick it up.
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The Ruth Cooper Research Fund is holding a benefit on March 12, 2011 at 5:00 pm at the Forman Center.
Ruth Cooper was a lifelong resident of Manito. In 1990 Ruth was diagnosed with Vascular Ehlers-Danlos, a genetic connective tissue disorder that cannot be cured and alters life for those with the disease. The mutated gene that is carried by those with VEDS results in the body producing faulty collagen (a protein which is like a glue that gives connective tissue strength). Many VEDS patients suffer from aneurisms, and arterial and organ ruptures which cannot be repaired due to the thin, fragile state of the vascular system. In 1990 Ruth thought she was having a heart attack but instead her aorta had dissected. Luckily for Ruth and her family, after hearing how her father and oldest brother had died at an early age, a doctor treating her thought maybe he knew what was going on. This was the first time the words Ehlers-Danlos had ever been spoken to us. Ruth and her family went to Johns Hopkins where a definitive diagnosis was made. Ruth was 37 when she was given this diagnosis and was told she would not live to be 40. Ruth lost her life at age 56 to complications of VEDS on March 12, 2010. Three of Ruth’s 5 daughters have been diagnosed with VEDS.
Ruth’s Family is holding a benefit on March 12, 2011 at 5:00 pm at the Forman Center in Manito to raise funds for VEDS research. The benefit will include a roasted pork dinner and a hot dog meal for kids, adults $7.00, kids $5.00, from 5:00-7:00 (take out meals available). A live auction will begin at 7:00. There will also be a silent auction, a raffle, bag toss game and a cash bar. Party On Productions will be spinning music from 9:00 pm until 1 am, $5.00 at the door for the dance. Meal tickets will be sold at the door or in advance by contacting Chris James 309-360-1095, Karen James at 309-657-3508 or Brittany Dorf at 309-370-4529.
Ruth touched many lives during the battles she faced each day living with this disorder. It is the family’s hope that we can provide some financial support for a research project that is being done by Dr. Hal Dietz at Johns Hopkins University to medicinally help control and prevent aneurisms and ruptures in all VEDS patients. His work is very promising and he has hopes to have a medicine within 5 years.
[FONT="]Donations such as monetary gifts, volunteers or products for the auction are needed. Please contact Karen James at 309-657-3508 if you have something you would like to donate and we will gladly pick it up.
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